Hyperacusis (3)

I wish they'd let me do it "outpatient". It's not an option though.

I have to weigh the whole thing... the possible benefit of the solu-medrol vs. the certain damage of the hospital stay.

If there's one thing I know, it's that I have to avoid stress. In my current situation, it's impossible. Going into the hospital may well push me over the top. Too, I have my big one coming up in a few months. It's been that way forever... starts in September, goes through until mid-January. Too much solu-medrol isn't good, and I'd rather take it for somthing it might actually help with, like the swelling from the optic neurits.

I can feel my brain doing its thing now, but this is nothing compared with what it does after autumn starts.

I just don't want to have to be in the hospital so damn much. Shoot... right or wrong.... I smoke! That alone is STRESS in a hospital setting.

(080405 ~Comment)

(on "So...")

Sorry things are so sucky... is this about finding housing?

yup :\ ...and affording it.... and about my disease being cured.

(Back again....) 1

I'm very sick, and need a place to live.

Detail: I should be in the hospital, but am not, for fear of losing the roof over my head.

~So...

Things are going from bad to worse. Thanks, Mr. Bush. You're a real swell guy. May the orifices of your progeny be infested with the maggots of a thousand flies.

~dragging time

I have to get a place to live. I can't make the housing authorities go any faster than they're going.

I fear going into the hospital. Last time, they nearly put me in a rest home. I can't risk that. Once you're in one of those places, good luck getting out.

I'm turning 36 in September. I'm not going into a fucking rest home! I don't care what my damn brain is doing!

~stupid disease

The MRI went fine. The results didn't.

They want me to come back in for (yet another) five day solu-medrol treatment.

I don't want to go.

I don't know if I will.

With the stress of the hospital, I think that it does more harm than good.

whatever

Hyperacusis (1,2)

Central hyperacusis with phonophobia in multiple sclerosis.
Weber H, Pfadenhauer K, Stöhr M, Rösler A.
(Department of Neurology and Clinical Neurophysiology, Klinikum Augsburg, Augsburg, Germany. oa.neurologie@klinikum_augsburg.de)

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(from an online MS group I belong to)

Does anyone know of any medication that works to help MS-
related "Central hyperacusis with phonophobia"?

To clarify, EXTREME sound sensitivity, to the point of pain and panic.

Date: Sun Jul 31, 2005 11:27 am
So far, nothing seems to work. They had me on Tegretol, for a while, and it seemed to (mysteriously) help, but then it stopped working. Earplugs don't work. Shoot, my heartbeat is too damn loud sometimes.

Out of all my MS symptoms, this one is at the top of my "I CAN'T TAKE IT ANYMORE!!!!" list. There's NO escape.

For years, they told me it was just a part of "PTSD". MISdiagnosis. For years, I thought I'd blown out my eardrums. I'm a drummer. For years, I thought everyone else was too loud and obnoxious.

I went to my Neurodude appointment, the other day... and I begged for something to help me with this. His first response was to doubt it being MS related. I didn't give a rat's ass what he said. I KNOW it's MS related. Damn Residents. I found the info online when I came home, and that was all the "proof" I needed to back up my assumption.

It's getting worse and and worse.

I just wondered if anyone knew of any medication that seemed to help.

From what I can gather, the answer is "no".... it's just part of
going deaf. This makes me sad.

I'm scheduled for an MRI today. Maybe I'll take a copy of the MRI and a copy of the article, and smack Neurodude upside the head with them.

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8/1/05 4:29 PM
...and the MRI results are in.

I'm "active". They want me to come back into the hospital for yet another 5 day solu-medrol treatment.

fun fun fun :\