Morning
6:41 AM
Just letting you know that I'm up, and not dead.
Will try Neurodude at 8:30. Basically, I'm going to tell him that if "we" want to try Solu-Medrol again, he'll have to set me up with Outpatient. If he wants an MRI after the treatment, he should get that set up too. If he wants an MRI before the treatment and can manage to schedule it, fine, but I don't care either way. I don't think that the hospital is a good idea. I really think that the stress will put me under.
8:34 AM
on hold
838 AM
...and he's not in (yet).
The receptionist said that she'll give him the message to call me (stat), when he gets in. His first patient isn't scheduled until 10.
shoot me?
11:37 AM - 2/2/06
~this is getting ridiculous
I called at 8:30am, like they told me to. He wasn't in. They said that they'd leave him a message to call, "stat", as soon as he came in. His first scheduled appointment was at 10:00.
It's almost 11:30 now, and I'm still... waiting on Neurodude.
2:56 PM - 2/2/06
~The Neurodance
So, at 1pm, I finally heard from Neurodude.
The short of it, is that tomorrow I have to go pee in a cup and have some blood sucked out of my arm. On Tuesday, I get to visit with an alien MRI machine to get pictures of my brain and neck taken. After that, maybe another outpatient Solu-Medrol course.
Am I happy about this? I don't know. I think that my brain and my whole spine should be done, not just a brain and c-spine. I'm not thrilled at the thought of more Solu-Medrol, but at least it'll be done outpatient. If it doesn't work, I don't know what I'm going to do. I have to somehow get them to stop pushing the stuff on me, if it's not working. He pretty much dismissed my IVSM/Prednisone request. I don't know if that's a battle that is at all winnable.
I'm tired. I need to try sleep and fluids. My veins go bonkers if I'm dehydrated, and too, I've felt sort of stuffy since the ER trip... no surprise there though. The place is downright dangerous when it comes to germs. With my luck, Neurodude will try blaming my eye problems on some sort of cold because my blood or piss will show some sign of one infection or another, thanks to the ER germ attack. I guess it's all good. It'll stay blind until he gives me the benefit of the doubt. He just seemed a little too focused on whether or not I had any symptoms of infection. You know, that could cause old lesions to be aggravated. Right. My bad. It's just a cold! Silly me!
7:11 PM - 7:11 PM
~using up my cell minutes
Well, apparently the great and powerful Oz (aka the MS Specialist) agreed with me that more of the spine needed to be looked at, aside from my neck. So... the MRI scheduling people called me and informed me that, so sorry, we can't do all 3 in one day... you'll have to come in about a week later to have the third one.
So... brain and c-spine on the 7th, and t-spine on the 13th. I suppose that they're skipping over the L-spine, which is fine by me. At this point, the only thing I want them to do in that area is to kiss my ass.
Am I having fun yet?
7:21 PM - 2/2/06
Evening
7:21 PM
So, they called me and told me that after Neurodude scheduled me for the 2, Rkd called and added on the t-spine. The 13th is the absolute best they could do. If I want all 3 together, it's even worse... something like the 20th.
They're supposed to call me to pre-register. Hopefully I can find out about getting copies then. The woman who called today was from the central booking place, and when she tried to transfer me over to the actual center, they weren't available.
I'm sorry that I couldn't check with you before saying ok to the appointment. :( If it's a problem, I'll try to get it changed. Just let me know.
...and thank you for all of this. I have no clue what I'd do without you.
11:20 PM
Fucking phone went off during the last 3 minutes of ER. Jk was texting me.
That's all it takes though... missed the end. FUCK FUCK FUCK!!!!!!
If you talk to anyone, can you see if they can tell you how it ended? The last I saw was Abby talking about a $10 bet with the (ex) Professor.
I'm REALLY miffed about this.
grrrrrr
Phone just rang. I'm stupid. I took the call.
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